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Join the International Costello Syndrome Support Group

In order to provide the best service to people who join the support group, all we ask is a few details. By maintaining a record of where people live, we may even know somebody in your area with a CS person in their family. Our records are Strictly Confidential, and the information will never be passed on to a 3rd party.

* = Required

Your Contact Details

Email Address

*

 Required

Mothers First Name

*   Required

Mothers Last Name

*

  Required

Fathers First Name

*

 Required

Fathers Last Name

*

  Required

Name of the person with Costello Syndrome

*

 Required

Date of birth (day/month/year)

*

 Required

House Number

*

  Required

Address Line 1

*

  Required

Address Line 2

 

City

*

  Required

Zip / Post code

*

  Required

Phone number

*

  Required

State/Province (US/Canada only)

 

Country

 

About the person diagnosed with Costello Syndrome

The name of the doctor who diagnosed CS

 

Age when diagnoses took place

 

Name and address of Center where CS was diagnosed. If Known

 

A simple genetic test can be carried out to confirm the diagnosis of Costello Syndrome, It is important for this test to be done to aid diagnosis, treatments and therapy.

Has a gene test been done to confirm the diagnosis?

*   Required

If the diagnosis has not been confirmed by testing, Please visit Genetests for more Information

Do you know the outcome of the test?

 

There are several Mutations of HRAS gene that are known to cause CS. If Known please tell us which it is.

 

Please let us know the ages of the parents when the Person with Costello syndrome was born

Mothers age
*

 Required

Fathers age

*

 Required

CostelloKids is about the whole family Could you please tell us about the CS persons Siblings
Do you have any other children in your family?
 
If the answer to the above question is yes. Could you please list the childrens names and birthdate's  

Would you like to join our E-mail discussion list ?

 


Comments:
Please enter anything else you would like to tell us about yourself.

 


         



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