Hi My name is Tammy Moore, and I am the president of the Costello Syndrome Family Network.  CSFN is a 501 (c) (3) non-profit organization based in the USA.

My husband Johnny and I have three children…Justin, Landon and Kelsi.  Kelsi, born in 1993, was diagnosed with CS just before her second birthday.  We live in Birmingham, Alabama where I chaired the 1st International Costello Syndrome Conference in 1999.  As a co-founder of CSFN, I have served as Vice-President and am honored to now serve as President.