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Our Conferences.

Since the first conference in 1999, our conference has become a tradition for the support group.

Family support and meeting with other is one of our key goals, and our conference provided a great opportunity for families, friends and doctors to come together, make new friends, have fun, and most of all have a good holiday.

Since Our first conference the support group has grown and gained a better understanding of all of the issues affecting people with Costello Syndrome.

Building on our early success we held our second conference was in Toronto in the summer of 2001. It was at this event our Medical board was formed by a group of dedicated and truly understanding doctors.

Our first conference was in Birmingham Alabama in the summer of 1999.

The second conference was held in Toronto in 2001

We held our third conference in Philadelphia in July 2003.

in 2005 our forth conference was held at Saint Louis University in 2005.

in 2007 we held or latest conference. This was an amazing success. As well as the family conference we also held our first ever research symposium.

Since our first conference in 1999 when only a few people in the world were diagnosed with CS, our numbers have grown, and our support group membership is continuing to grow with the new cases of CS which have been diagnoses since the Gene for CS was identified in 2005.

To find our more about our upcoming event, you can visit the news board for latest information, or follow the links for the conference pages.

I hope that you will enjoy these pages, as you relive the fun that was had by all, as well a better understanding of CS.

Thank you for stopping by

Colin Stone, Webmaster.

 



 
   
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