Research into RASopathies


Researchers at the University of Manchester and Manchester Centre for Genomic Medicine are looking to recruit for a psychological study of Noonan, CFC and Costello syndromes.

If you would like to find out more, Please click here to find out more.

 


welcome

About Our Group

We’re a parent to parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children. But most of all we provide a support network through which families can share there own experiences and support each other through a mutual understanding. Whatever you learn from this site.. "....don't stop asking questions!" The answers may surprise you.

Our aim is to gain a better understanding of Costello Syndrome and to identify the best practices in treatment for our children. But most  importantly we  provide a support network through which families can share their own experiences and support each other through mutual understanding and experiences.
 

Colin Stone, founder and director of CostelloKids  UK

Selected Videos

Meet Jill Taylor
An interview with Kristin
Welcome to my life-French
Welcome to my life-English
An interview with Erin
My Story-Helaina Stone
Helaina - A documentary
Understanding RAsopathies
Daisy's story