welcome

Welcome to the new website for the international Costello syndrome support group

This new site was launched 1st May 2012, and we are still developing and adding new content. 

We’re an “e-grass-roots” parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children. But most of all we provide a support network through which families can share there own experiances and support each other through a mutual understanding. Whatever you learn from this site.. "....don't stop asking questions!" The answers may supprise you.

Our aim is to gain a better understanding of Costello Syndrome to identify the best practices in treatment for children, but most  importantly we  provide a support network through which families can share their own experiences and support each other through mutual understanding and experiances.
 

Colin Stone, founder and director of CostelloKids in the UK