welcome

2013 Costello Syndrome Family Conference events

8th International Costello Syndrome Family Forum

The 8th International Costello Syndrome Family Forum will be held from July 30 to August 4, 2013 in Orlando FL.
The forum is typically held in late summer. This seems to be a good time to have it as many children from around the world are out of school at this time.
for more information please visit Costello Syndrome family network

The 3rd UK / European Costello & CFC Family Meeting.21 August 2013 - 23 August 2013 Hilton Hotel Northampton UK.

This year we are happy to be invighting families affected by Noonan syndrome. However places are limited.
We look forward to seeing you at the event
For more information Please Follow this link or select an option from the menue above

 

 

About Our Group

We’re a parent to parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children. But most of all we provide a support network through which families can share there own experiences and support each other through a mutual understanding. Whatever you learn from this site.. "....don't stop asking questions!" The answers may surprise you.

Our aim is to gain a better understanding of Costello Syndrome and to identify the best practices in treatment for our children. But most  importantly we  provide a support network through which families can share their own experiences and support each other through mutual understanding and experiences.
 

Colin Stone, founder and director of CostelloKids in the UK

Selected Videos

Meet Jill Taylor
An interview with Kristin
Welcome to my life-French
Welcome to my life-English
An interview with Erin
My Story-Helaina Stone
Helaina - A documentary
Understanding RAsopathies
Daisy's story