We’re an “e-grass-roots” parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children.

But most of all we provide a support network through which families can share there own experiances and support each other through a mutual understanding. Whatever you learn from this site.. "....don't stop asking questions!" The answers may supprise you.